No, Long Covid is Not Helping People with ME… – The ME community has held hopes that the research in to Long Covid would finally be the help we needed, but sadly, at least so far, that is not the case. 10/4/2022

Research update: The relation between ME/CFS disease burden and research funding in the USA – “ME/CFS has traditionally been one of the lowest funded diseases by the United States National Institutes of Health (NIH).”

Could the kynurenine pathway (KP) be the key missing piece of Myalgic Encephalomelitis/Chronic Fatigue Syndrome (ME/CFS) complex puzzle? The conclusion of the study seems to be that it warrants more study.

National Academy of Medical Sciences, Engineering and Medicine on ME/CFS

NIH Pathways to Prevention Workshop: Advancing the Research on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome 2014

Doctors’ attitudes toward specific medical conditions

Chronic Fatigue Initiative “has mounted the first scientifically-rigorous and statistically-significant wide-scale research into the underlying infectious, immunological and toxicological causes of Chronic Fatigue Syndrome (“CFS”), which had previously attracted little to no resources for basic research.”

https://meresearch.info

United States

California

ME/CFS Collaborative Research Center at Stanford University under the direction of Dr. Ron Davis, MD

The ME/CFS Initiative at Stanford University is outdated, the most recent recources are for 2017 but there is still some valuable information there.  It gets rated with 1 out of 5 stars (1 / 5) because it’s so outdated.

Studies That Are Recruiting

International

https://www.meaction.net/research-actions/

United Kingdom

the DecodeME website is actively recruiting research participants (11/4/2022)

London School of Hygiene & Tropical Medicine’s International Centre for Evidence in Disability within the Department of Clinical Research Cure ME‘s epidemiological, clinical and laboratory research into ME/CFS

https://www.meresearch.org.uk/