Crashing
The Bateman Horne Center's ME/CFS Crash Survival Guide
Housing
Chesterfield Virginia's Housing Choice Voucher Program
Managing
The NICE UK's guide to Myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome: diagnosis and management and their news blurb about the guide.
The Bateman-Horne Center's Guidebook Resource Center for ME/CFS as well as their Managing Your Care guide (5 / 5)
Kaiser Permanente is advocating GET. They will also say "staying within your energy envelope" which has become a coded description of GET. (1 / 5)
Managing Chronic Fatigue Syndrome and Fibromyalgia: 2015 edition by CFS Self-Help
WebMD - advocates the use of GET, a dangerous protocol for ME/CFS sufferers. (1 / 5)
Mental Health: Coping with Depression, Stress and Anxiety
Newbies
Tips for Newbies with Fibromyalgia and/or Chronic Fatigue Syndrome (ME/CFS) by Health Rising with Dr. Cort Johnson (5 / 5)
Online Courses
ME/CFS & Fibromyalgia Self Help - "The ME/CFS and Fibromyalgia Self-Help Program is a non-profit organization offering a suite of low-cost and free online self-help courses, plus other resources for people affected by ME/CFS and fibromyalgia." They offer extremely affordable online classes for managing the ME life...
Orthostatic Intolerance
Pacing
Anearobic threshold: According to Dr. Charles Lapp the "The ACTUAL (anearobic) threshold can only be determined by Cardiopulmonary Exercise Testing, which is expensive and not readily available."
Do we have to live like this? by Dr. Charles Lapp, MD. 'ME/CFS is considered a chronic illness,... less than 10% fully recover. The improvement rate is even better for adolescents with ME/CFS. The current standard of therapy is to treat sleep and pain issues first, then address co-morbidities or other health issues. Dr. Bruce Campbell and I agree (TreatCFSFM.org) that it is best to assume the worst at first, and work toward improving. PWCs seem to do best when they accept the illness and adapt to it; pace their activities and take frequent rests; manage sleep and pain first; then address co-morbidities and other health issues. As physicist Steven Hawking once remarked, “However bad life may seem, there is always something you can do, and succeed at. While there’s life, there is hope.”'
Facebook group: ME/CFS: Below The Threshold "This group is for people with ME/CFS using a heart rate monitor (HRM) to stay below their aerobic threshold (AT)... The contents of this group have been compiled into 'the ultimate guide to pacing with a HRM', available to download here... https://paradoxfloss.gumroad.com/l/belowthethreshold"
Mito Action's guide to managing energy with Mitochondrial disease.
Pacing with ME/CFS & Fibromyalgia Self Help - "The ME/CFS and Fibromyalgia Self-Help Program is a non-profit organization offering a suite of low-cost and free online self-help courses, plus other resources for people affected by ME/CFS and fibromyalgia." They offer extremely affordable online classes for managing the ME life...
Traffic Light System for Pacing
Pain Management