Do I Have to Live Like This?!
'ME/CFS is considered a chronic illness, but longitudinal studies suggest that 17-64% of adult PWCs improve, less than 10% fully recover. The improvement rate is even better for adolescents with ME/CFS. The current standard of therapy is to treat sleep and pain issues first, then address co-morbidities or other health issues. Dr. Bruce Campbell and […]
Why Do I Wake Up Exhausted?
"There are at least four core symptoms in ME/CFS: pain, cognitive dysfunction, fatigue or post-exertional malaise, and non-restorative sleep. Thus, awakening unrefreshed is one of the cardinal symptoms of ME/CFS, and one of the last symptoms to resolve as one improves. You will probably wake up tired whether you sleep 4 hours or 14. Nevertheless, primary sleep […]
What about Exercise? by Physios (Physical Therapists) for ME
“Do not offer people with ME/CFS physical activity or exercise programmes that use fixed incremental increases, based on deconditioning and exercise avoidance theories as perpetuating ME/CFS.” https://www.physiosforme.com/what-about-exercise
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Using Graded Exercise to Get More Energy
It's appalling that GET is still being recommended. Kaiser Permanente gets a whole whopping rating of . https://wa.kaiserpermanente.org/kbase/topic.jhtml?docId=zx1021
Study finds brain abnormalities in chronic fatigue patients
Radiology researchers have discovered that the brains of patients with chronic fatigue syndrome have diminished white matter and white matter abnormalities in the right hemisphere. https://med.stanford.edu/news/all-news/2014/10/study-finds-brain-abnormalities-in-chronic-fatigue-patients.html
Scientists Discover Robust Evidence That Chronic Fatigue Syndrome Is a Biological Illness
IMMUNE SIGNATURES IN BLOOD POINT TO DISTINCT DISEASE STAGES, OPEN DOOR TO BETTER DIAGNOSIS AND TREATMENT https://www.publichealth.columbia.edu/public-health-now/news/scientists-discover-robust-evidence-chronic-fatigue-syndrome-biological
Cornell University's Center for Enervating NeuroImmune Disease
https://neuroimmune.cornell.edu/ https://neuroimmune.cornell.edu/
Indicator of chronic fatigue syndrome found in gut bacteria
2016 https://news.cornell.edu/stories/2016/06/indicator-chronic-fatigue-syndrome-found-gut-bacteria
Worse Than the Disease: Curing Chronic Fatigue
https://undark.org/2016/10/27/chronic-fatigue-graded-exercise-pace/ Chronicles the use of GET at the Cleveland Clinic and the Mayo Clinic.